Archive for April, 2018

“Unexpectedly” Part Three

April 24, 2018

John Oliver, the brilliant commentator, comedian painstakingly researched his recent segment before it was aired. This most frightening segment dealt with dialysis.  He gave the public an educational preview of what kidney patients would sadly come up against with dealing with this disease. There are two well known drug companies called Fresenius and another one which I’m not sure of the spelling. Both have had lawsuits against them. One more so than the other. The first one my son Andre has. Sadly the percentage survival rate is lower the more years a person takes part. Yet even more tragic is if a person who doesn’t take part at all their survival rate is only 10 days. A person feels better if he/she is on dialysis; yet feels the normal reactions of fatigue and other ailments to numerous to mention.  Because of the abundance of illegal overdoses: there are many more recipients that are able to donate their organs to ones who are in desperate need of them. This is for organ transplants. However the two drug companies aren’t in favor of patients who are fortunate to receive transplants. Because the drug companies will loose money. How dreadful is this. Each time has dialysis there is an anti clotting agent that prevents to blood from clotting and is poured into the tube as the blood in filtered. This is called Liquid Gold. There is only a certain amount of this being used each time. However the drug company charges much more than originally being used and therefore making more money. Years ago before dialysis was used the people were dying at a exorbitant rate as if it was resembling Russian Roulette. Andre has dialysis tomorrow. On Wednesday he is going to Strong for a Peritoneal Dialysis to have a catheter put in his intestine called a PD so he will have home dialysis. This won’t happen immediately. The catheter that is in his chest that is near his heart has to heal first. So then he will have two catheters for a month in a half. It is amazing that what is inside the body can surely affect what is on the outside. People should always never take anyone or anything for granted.

Advertisements

” Unexpectedly” Part Two

April 21, 2018

Absolutely no day is the same. Every day is very eventful with lots to accomplish. For instance, we went to the dollar tree of course stopping off at Strong Hospital Pharmacy to pick up Andre’s medicine. Then we came home and I proceeded to do all the laundry Now today after being truly exhausted and after a well sounded night’s sleep, got up and Andre asked for medicine in particular blood pressure. This is Saturday. So last Sunday just a less than a week ago Andre’s catheter came out. After having dialysis on Saturday, which by the way he didn’t go today being that he was feeling up to par: so as I am scripting this I’m listening for him. So called Adam and we went to the emergency room at Strong. Got there at 10 in the morning after taking a bus there. Waited to be called then was asked to have a seat and wait. During this time Andre was very worried yet kept his cool and began to write, do crossword puzzles and still just waiting. This turned to be two in the afternoon and still waiting. Many people going to and fro in and out. People screaming, going crazy, police were called. Yet we were still waiting. Then the time was turning into 6 in the evening. Andre struck up a conversation with a patient who had been on dialysis for a year and so what gave a brief education to Andre as to what to look forward to as they both shared their ailment together. It was good to have Andre relate to someone who shared what Andre was going through as Andre didn’t feel he was the only person. As the time turning into seven in the evening Andre was at last called to get blood work. This took at least half an hour; then Andre was shown a room separate from the emergency room further down the hall. As I followed I kept considerably calm.  Then came another wait as the people were cleaning the room. We both wondered how long this would take. The male nurse came in to do more blood work. Then another nurse proceeded to give Andre a series of medicines. With nothing in his stomach he threw it all up as he was returning from the bathroom. Knowing full well these medicines are suppose to be taken with eating. This says specifically always eat. We both thought why the nurse did this and came to the conclusion that she wasn’t thinking. Then she commented ” Would you like some crackers” Of course Andre was very nice and spoke negatively to her response. So after waiting a short time longer Andre finally got a room for the night. It was now nine thirty in the evening. Adam brought Andre McDonalds. Andre couldn’t eat anything after midnight.  After twelve hours I went home and spent a good amount of the night cleaning and organizing the apartment, then fell into a deep sleep.

 

 

 

 

” Unexpectedly” Part One

April 21, 2018

Mighty cold abundance for an April day we both wanted an unexpectedly change of scenery which was great. We both took the bus to Marketplace Mall and enjoyed ourselves tremendously. Met a friend for a brief time as he and his little girl was a mere joy.  Then we ventured to the  many stores to check out some of the things that we needed. We spent a series of only five hours there and it was a pleasure just to walk gradually. We both took our time and just looked at what we needed. Watched our expenses which was good. All told we covered a three mile walk yet it didn’t really seem that long at all. Believe me we weren’t even tired when we returned home. We both had plenty of time to relax.

” Wonderful Day”

April 8, 2018

Finally after more than frustration, I am online at last and most important I’m able to blog at last! Seems this took forever as I waited, prayed and had persistence to do this! It’s so important to me to express my inner thoughts on everything and anything! Thanks so much for the emails to me that went on for weeks. I’m a reserved person and I’m most grateful to the wordpress experts: all three of them, namely Vincenzo, Ruben and Anna. Thanks so much for your patience! So all is left is three words. Patience Persistence and Prayer! Which is very powerful. Things are going relatively well for me. Went to the Greek Orthodox Church today and it is Easter Sunday today for them. There are similarities between the G O C and the Roman Catholic Church: it is amazing. Feel very at home there. There at the service there is the three parts of the Mass Service! Both churches are the same as they believe in the Virgin Mary, say many of the prayers so I’m able to take part in this and besides going to Confession! Most of all this church is near to where I live. So what’s better than this! Ok, being able to blog! Been on my notes on facebook and expressing my utter frustration in not blogging.  The notes are temporary. Told of my being uncomfortable with that social media site! So now I’m again turning over another new leaf and a promise to myself! Starting now won’t share this and my continuing blogs on any social media! Again Thanks so much to wordpress! I will email you!!